¿Qué es el Síndrome de Gilles de la Tourette?

Es un trastorno neurobiológico. Los síntomas aparecen normalmente en la infancia: la edad más común de aparición de los primeros tics es durante los primeros cursos de primaria.
Hay cuatro distintivos básicos que caracterizan el trastorno. Estos rasgos clínicos son necesarios para el diagnostico pero, a menudo, hay otros comportamientos asociados que se pueden observar en algunos pacientes con ST. Los rasgos básicos son los siguientes:
•El niño con ST presenta múltiples tics motores involuntarios.
•Tiene tics vocales, profiere involuntariamente ruidos, palabras o frases.
•Los síntomas son fluctuantes.
•Los síntomas del ST varían con el tiempo.
sindr tourette
Muchos de ellos tienen problemas adicionales como:
•Trastorno obsesivo-compulsivo: la persona siente necesidad de hacer algo repetidamente, como lavarse las manos o asegurarse que la puerta está cerrada con llave. Las compulsiones más recuentes son tocar, golpear, contar, frotar, parpadear y mirar fijamente.
•Trastorno de déficit de la atención, en el cual la persona tiene dificultades en concentrarse y se distrae fácilmente.
•Trastornos del desarrollo del aprendizaje en los hay dificultades de lectura, escritura, aritmética, y problemas de percepción.
•Problemas de control de impulsos, pudiendo darse conductas muy agresivas o hechos socialmente inapropiados.
•Trastornos del sueño, despertarse frecuentemente o hablar dormido.

Pronóstico:
No hay cura para el ST. Sin embargo, el trastorno en muchos pacientes mejora a medida que pasa el tiempo. La esperanza de vida no se ve afectada, no es una enfermedad degenerativa. En ocasiones se presenta una remisión completa después de la adolescencia. Aunque los tics pueden disminuir con la edad, es posible que los trastornos neuropsiquiátricos, como la depresión, los ataques de pánico, alteraciones del estado de ánimos y conductas antisociales, pueden aumentar.
Terapia psicológica.
La psicoterapia no es un tratamiento específico del trastorno de la Tourette, pero puede ser útil para ayudar al individuo a manejar el estigma de la enfermedad y los problemas de autoestima, para promover el bienestar interpersonal y las habilidades sociales, y para mejorar la opción del trabajo. Además de mejorar las habilidades adaptativas, la psicoterapia puede reducir la ansiedad que empeora la gravedad de los síntomas. Si además están presentes trastornos afectivos y de ansiedad, el manejo de estos estados puede mejorar el curso del trastorno.

Principios generales de la intervención:
•Ayudar a la familia mediante grupos de apoyo, terapia en familia, apoyo rofesional, grupo de hermanos…
•Promover su autonomía e independencia social y personal.
•Apoyar, explicar e informar con detenimiento y de forma realista la aturaleza del trastorno, para comprender y aceptar mejor sus síntomas.
•Hacer una individualización de los objetivos y estratégicas terapéuticas.
•Dar oportunidades para una implicación activa del niño.
•Reducir las situaciones que pueden generar estrés en él.
•Diseñar un entorno cálido, positivo y empático.
•Proveer apoyo, dar señales y refuerzos.
•Establecer programas para controlar sus iras.
•Intentar motivar a los niños para que controlen en lo que puedan conductas socialmente inaceptables, e intenten sustituirles por conductas o tics socialmente aceptables.

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